Post by steph on Apr 15, 2012 18:01:59 GMT
Sharon Brewer Apr 14
Hi Steph , jay is doing sort of ok , we had a bit of a scare last November as the consultants though the tumor had spread to his spine but the last scan in feb showed it had all gone so don't really know what that was about, also it showed his tumor had shrunk by a third which is totally fantastic!!!!!
On the down side jay is virtually in a wheelchair all the time now and has started showing autistic behaviours which they have told us could get worse but we are dealing with these issues as they come about.
Jay amazes us with his spirit and has always got a smile and this makes me more determined to fight all the agencies to get what he deserves in terms of equipment etc which is one thing I never imagined we would b doing or realise how exhausting and frustrating it is , but we are thankful for proton and hope his next scan in July shows an improvement yet again .
Thank you so much for Asking it means a lot to us and thank you and the members again for what you done for us
Sharon